Publications

2018

Baillie J, Anagnostou D, Sivell S, Van Godwin J, Byrne A, Nelson A. (2018). Symptom management, nutrition and hydration at end of life: a qualitative exploration of patients', carers' and health professionals' experiences and further research questions. BMC Palliative Care. https://doi.org/10.1186/s12904-018-0314-4

Font C, Nelson A, Garcia-Fernandez T, Prout H, Gee P, Noble S, (2018). Patients' experience of Living with Cancer-associated thrombosis in Spain (PELICANOS). Supportive Care Cancer, pp. 1-7.  https://doi.org/10.1007/s00520-018-4174-5

Harrop E, Nelson A, Rees H, Harris D, Noble S, (2018). The challenge pathway: A mixed methods evaluation of an innovative care model for the palliative and end-of-life care of people with dementia (Innovative practice).. Dementia (London, England), 17 (2), pp. 252-257

Collins J, Noble S, Chester J, Davies H, Evans W, Farewell D..... Byrne A, (2018). The value of physical performance measurements alongside assessment of sarcopenia in predicting receipt and completion of planned treatment in non-small cell lung cancer: an observational exploratory study.. Supportive care in cancer, 26 (1), pp. 119-127

David Wasley, Nichola Gale, Sioned Roberts, Karianne Backx, Annmarie Nelson, Robert van Deursen, Anthony Byrne, (2018). Patients with established cancer cachexia lack the motivation and self-efficacy to undertake regular structured exercise.. Psycho-oncology, 27 (2), pp. 458-464. https://doi.org/10.1002/pon.4512

2017

Lloyd A, Dewilde S, Noble S, Reimer E, Lee A, (2017). What Impact Does Venous Thromboembolism and Bleeding Have on Cancer Patients’ Quality of Life?. Value in Health, DOI: https://doi.org/10.1016/j.jval.2017.09.015

Maraveyas A, Muazzam I, Noble S, Bozas G, (2017). Advances in managing and preventing thromboembolic disease in cancer patients.. Current opinion in supportive and palliative care, 11 (4), pp. 347-354

Harrop E, Noble S, Edwards M, Sivell S, Moore B, Nelson A. (2017). Managing, making sense of and finding meaning in advanced illness: a qualitative exploration of the coping and wellbeing experiences of patients with lung cancer.. Sociology of health & illness, 39 (8), pp. 1448-1464

Anagnostou D, Sivell S, Noble S, Lester J, Byrne A, Sampson C, Nelson A, (2017). Development of an intervention to support patients and clinicians with advanced lung cancer when considering systematic anticancer therapy: protocol for the PACT study.. BMJ open, 7 (7), pp. e015277

Hunter R, Lewis S, Noble S, Rance J, Bennett PD. (2017). "Post-thrombotic panic syndrome": A thematic analysis of the experience of venous thromboembolism. British journal of health psychology, 22 (1), pp. 8-25. DOI: 10.1111/bjhp.12213

Anagnostou D, (2017). Palliative care improves quality of life and reduces symptom burden in adults with life-limiting illness. Evidence Based Nursing, http://dx.doi.org/10.1136/eb-2016-102603

2016

Harrop E, Noble S, Edwards M, Sivell S, Moore B, Nelson A, FRAGMATIC Trial Management Group (TMG) (2016). "I didn't really understand it, I just thought it'd help": exploring the motivations, understandings and experiences of patients with advanced lung cancer participating in a non-placebo clinical IMP trial. Trials, 17 (1), pp. 329. DOI: 10.1186/s13063-016-1460-8

Macbeth FR, Noble SI, Evans J, Ahmed S, Cohen D, Hood K, Dana Knoyle D... Griffiths G. (2016). FRAGMATIC: A randomised phase III clinical trial investigating the effect of FRAGMin(R) Added to standard Therapy In patients with lung Cancer. Journal of Clinical Oncology, pp. 488-494. DOI: 10.1186/1471-2407-9-355

van Vliet LM, Gao W, DiFrancesco D, Crosby V, Wilcock A, Byrne A, Al-Chalabi A... OPTCARE Neuro (2016). How integrated are neurology and palliative care services? Results of a multicentre mapping exercise. BMC neurology, pp. 63. DOI: 10.1186/s12883-016-0583-6

Bhatnagar S, Noble S, Chaturvedi SK, Gielen J. (2016). Development and Psychometric Assessment of a Spirituality Questionnaire for Indian Palliative Care Patients. Indian journal of palliative care, 22 (1), pp. 9-18. DOI: 10.4103/0973-1075.173939

Noble S, Sui J. (2016). The treatment of cancer associated thrombosis: does one size fit all? Who should get LMWH/warfarin/DOACs?. Thrombosis research, pp. S154-9. doi.org/10.1016/S0049-3848(16)30115-3

Harrop E, Kelly J, Griffiths G, Casbard A, Nelson A, Published on behalf of the BOLERO Trial Management Group (TMG) (2016). Why do patients decline surgical trials? Findings from a qualitative interview study embedded in the Cancer Research UK BOLERO trial (Bladder cancer: Open versus Lapararoscopic or RObotic cystectomy). Trials, pp. 35. DOI: 10.1186/s13063-016-1173-z

Font C, Garcia-Fernandez T, Nelson A, Prout H, Noble S. (2016). PO-61 - Patients' Experiences of LIving with CANcer associated thrOmbosis in Spain (PELICANOS). Thrombosis research, pp. S199. doi.org/10.1016/S0049-3848(16)30194-3

Davies NA, Noble S, Harrison NK, Morris RH, Evans PA. (2016). PO-25 - FATCAT: an observational cohort study investigating fractal dimension (df) as a biomarker of thrombogenicity in cancer associated thrombosis during chemotherapy for lung cancer. Thrombosis research, pp. S185. doi.org/10.1016/S0049-3848(16)30158-X

Noble S, (2016). Thromboembolic disease and breathlessness. Current opinion in supportive and palliative care, 10 (3), pp. 249-55. DOI: 10.1097/SPC.0000000000000228

Bowyer AV, Finlay I, Baillie J, Byrne A, McCarthy J, Sampson C, Snow V... Nelson A. (2016). Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study. BMJ supportive & palliative care. dx.doi.org/10.1136/bmjspcare-2015-000920

Finlay i, Noble s. (2016). Graduate Education for Non Specialists. In Bruera E, Textbook of palliative medicine and supportive care. (pp. 159-166).

Hopewell-Kelly N, Baillie J, Sivell S, Harrop E, Bowyer A, Taylor S, Thomas K... Nelson A. (2016). Palliative care research centre's move into social media: constructing a framework for ethical research, a consensus paper. BMJ supportive & palliative care.

Anagnostou D, Byrne A, Sivell S, Sampson C, Noble S, Lester J, Nelson A. (2016). C08-C Decision-Making of Treatment In Advanced Lung Cancer: Results from the First Three Stages of the PACT Study (An Intervention to Support Advanced Lung Cancer Patients and Their Clinicians When Considering Systemic Anti-Cancer Therapy). Journal of Pain and Symptom Management, 52 (6), pp. e26. doi.org/10.1016/j.jpainsymman.2016.10.044

Harrop E, Morgan F, Byrne A, Nelson A. (2016). "It still haunts me whether we did the right thing": a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers. BMC palliative care, 15 (1), pp. 92. DOI: 10.1186/s12904-016-0165-9

 Macbeth F, Carter B, Noble S, Hood K. (2016). Further results of the FRAGMATIC trial of thromboprophylaxis in lung cancer. Translational lung cancer research, 5 (3), pp. 347-9. doi: 10.21037/tlcr.2016.05.07

Woodman C, Baillie J, Sivell S. (2016). The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ supportive & palliative care, 6 (4), pp. 418-429. http://dx.doi.org/10.1136/bmjspcare-2014-000794

Noble S, (2016). Direct oral anticoagulants and cancer: no swansong yet for the low-molecular-weight heparins. The Lancet Haematology, 3 (8), pp. e357-e358. https://doi.org/10.1016/S2352-3026(16)30065-5

Taylor S, Demeyin W, Muls A, Ferguson C, Farnell DJ, Cohen D, Andreyev J... Staffurth J. (2016). Improving the well-being of men by Evaluating and Addressing the Gastrointestinal Late Effects (EAGLE) of radical treatment for prostate cancer: study protocol for a mixed-method implementation project. BMJ open, 6 (10), pp. e011773. http://dx.doi.org/10.1136/bmjopen-2016-011773

Noble S, Pease N, Sui J, Davies J, Lewis S, Malik U, Alikhan R... Nelson A. (2016). Impact of a dedicated cancer-associated thrombosis service on clinical outcomes: a mixed-methods evaluation of a clinical improvement exercise. BMJ open, 6 (11), pp. e013321. http://dx.doi.org/10.1136/bmjopen-2016-013321

Schünemann HJ, Ventresca M, Crowther M, Briel M, Zhou Q, Garcia D, Lyman G... IPDMA heparin use in cancer patients research group (2016). Use of heparins in patients with cancer: individual participant data meta-analysis of randomised trials study protocol. BMJ open, 6 (4), pp. e010569. http://dx.doi.org/10.1136/bmjopen-2015-010569

Taylor S, Byrne A, Adams R, Turner J, Hanna L, Staffurth J, Farnell D... Green J. (2016). The Three-item ALERT-B Questionnaire Provides a Validated Screening Tool to Detect Chronic Gastrointestinal Symptoms after Pelvic Radiotherapy in Cancer Survivors. Clinical oncology (Royal College of Radiologists (Great Britain)), 28 (10), pp. e139-47. https://doi.org/10.1016/j.clon.2016.06.004

Fallon M, Hoskin PJ, Colvin LA, Fleetwood-Walker SM, Adamson D, Byrne A, Murray GD... Laird BJ. (2016). Randomized Double-Blind Trial of Pregabalin Versus Placebo in Conjunction With Palliative Radiotherapy for Cancer-Induced Bone Pain. Journal of clinical oncology: official journal of the American Society of Clinical Oncology, 34 (6), pp. 550-6. DOI: 10.1200/JCO.2015.63.8221

Macbeth F, Noble S, Evans J, Ahmed S, Cohen D, Hood K, Knoyle D... Griffiths G. (2016). Randomized Phase III Trial of Standard Therapy Plus Low Molecular Weight Heparin in Patients With Lung Cancer: FRAGMATIC Trial. Journal of clinical oncology: official journal of the American Society of Clinical Oncology, 34 (5), pp. 488-94. DOI: 10.1200/JCO.2015.64.0268

Fallon M, Hoskin PJ, Colvin LA, Fleetwood-Walker SM, Adamson D, Byrne A, Murray GD... Laird BJ. (2016). Randomized Double-Blind Trial of Pregabalin Versus Placebo in Conjunction With Palliative Radiotherapy for Cancer-Induced Bone Pain. Journal of clinical oncology: official journal of the American Society of Clinical Oncology, 34 (6), pp. 550-6. DOI: 10.1200/JCO.2015.63.8221

2015

Noble S, Prout H, Nelson A. (2015). Patients' Experiences of LIving with CANcer-associated thrombosis: the PELICAN study. Patient preference and adherence, pp. 337-45. https://doi.org/10.2147/PPA.S79373

Harrop E, Baillie J, Byrne A, Annmarie N. (2015). O-5 Improving access to palliative care for black and minority ethnic (bame) groups: results from an evaluation of a hospice outreach project in south wales. BMJ Supportive & Palliative Care, 5 (Suppl 3), pp. A74.3-A75. http://dx.doi.org/10.1136/bmjspcare-2015-001026.207

Best S, Tate T, Noble B, Smith R, Tuft J, Tracey N, McCullugh A... Cowan K. (2015). RESEARCH PRIORITY SETTING IN PALLIATIVE AND END OF LIFE CARE: THE JAMES LIND ALLIANCE APPROACH CONSULTING PATIENTS, CARERS AND CLINICIANS. BMJ Supportive & Palliative Care, 5 (1), pp. 102.1-102. http://dx.doi.org/10.1136/bmjspcare-2014-000838.3

Sivell S, Prout H, Baillie J, Byrne A, Edwards M, Harrop E, Hopewell-Kelly N... Nelson A. (2015). CONDUCTING QUALITATIVE RESEARCH INTERVIEWS WITH PALLIATIVE AND END OF LIFE CARE PATIENTS IN THE HOME SETTING; REFLECTIONS AND RECOMMENDATIONS FROM AN ACADEMIC PALLIATIVE CARE RESEARCH CENTRE. BMJ Supportive & Palliative Care, 5 (1), pp. 117.2-117. http://dx.doi.org/10.1136/bmjspcare-2014-000838.40

McGleish E, Sivell S, Nelson A. (2015). THE POTENTIAL FOR NURSE INDEPENDENT PRESCRIBING BY THE CLINICAL NURSE SPECIALIST IN PALLIATIVE CARE IN THE COMMUNITY; ATTITUDES AND EXPERIENCES OF GENERAL PRACTITIONERS. BMJ Supportive & Palliative Care, 5 (1), pp. 105.2-105. http://dx.doi.org/10.1136/bmjspcare-2014-000838.11

Woodman C, Baillie J, Sivell S. (2015). RELATIVES' PREFERRED PLACE OF CARE AT THE END-OF-LIFE: IMPLICATIONS FOR PALLIATIVE CARE IN THE FUTURE. BMJ Supportive & Palliative Care, 5 (1), pp. 116.3-117.  http://dx.doi.org/10.1136/bmjspcare-2014-000838.38

Hopewell-Kelly N, Fitzgibbon J, Baillie J, Nelson A. (2015). TACT: WHAT IMPACT DOES RESEARCH PARTNER INVOLVEMENT HAVE ON THE WORKING PRACTICES OF A CANCER CLINICAL TRIAL UNIT AND ACADEMIC RESEARCH CENTRE?. BMJ Supportive & Palliative Care, 5 (1), pp. 107.3-108.  http://dx.doi.org/10.1136/bmjspcare-2014-000838.16

Davies NA, Harrison NK, Sabra A, Lawrence MJ, Noble S, Davidson SJ, Evans VJ... Evans PA. (2015). Application of ROTEM to assess hypercoagulability in patients with lung cancer. Thrombosis research, 135 (6), pp. 1075-80. https://doi.org/10.1016/j.thromres.2015.03.021

Sampson C, Gill BH, Harrison NK, Nelson A, Byrne A. (2015). The care needs of patients with idiopathic pulmonary fibrosis and their carers (CaNoPy): results of a qualitative study. BMC pulmonary medicine, pp. 155. DOI: 10.1186/s12890-015-0145-5

Sivell S, Lidstone V, Taubert M, Thompson C, Nelson A. (2015). Identifying the key elements of an education package to up-skill multidisciplinary adult specialist palliative care teams caring for young adults with life-limiting conditions: an online Delphi study. BMJ supportive & palliative care, 5 (3), pp. 306-15. http://dx.doi.org/10.1136/bmjspcare-2013-000595

Noble S, (2015). Palliation for haematological and solid tumours: what difference?. The Lancet. Haematology, 2 (8), pp. e309-10. https://doi.org/10.1016/S2352-3026(15)00128-3

Sampson C, Hope-Gill B, Harrison N, Nelson A, Byrne A. (2015). CANOPY: CARE NEEDS OF PATIENTS WITH IDIOPATHIC PULMONARY FIBROSIS AND THEIR CARERS. BMJ Supportive & Palliative Care, 5 (1), pp. 113.2-113. http://dx.doi.org/10.1136/bmjspcare-2014-000838.30

Sivell S, Prout H, Hopewell-Kelly N, Baillie J, Byrne A, Edwards M, Harrop E... Nelson A. (2015). Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper. BMJ supportive & palliative care, http://dx.doi.org/10.1136/bmjspcare-2015-000892

Noble S, Matzdorff A, Maraveyas A, Holm MV, Pisa G. (2015). Assessing patients' anticoagulation preferences for the treatment of cancer-associated thrombosis using conjoint methodology. Haematologica, 100 (11), pp. 1486-92. doi:10.3324/haematol.2015.127126

Byrne A, Upton L, Townsend S. (2015). Mind the gap: a step forward in supporting hospice-based research. BMJ supportive & palliative care, 5 (1), pp. 4-6. http://dx.doi.org/10.1136/bmjspcare-2014-000808

Harrop E, Byrne A, Nelson A. (2014). "It's alright to ask for help": findings from a qualitative study exploring the information and support needs of family carers at the end of life. BMC palliative care, pp. 22.  DOI: 10.1186/1472-684X-13-22

Mitchell H, Noble S, Finlay I, Nelson A. (2015). Defining the palliative care patient: its challenges and implications for service delivery. BMJ supportive & palliative care, 5 (4), pp. 328-34. http://dx.doi.org/10.1136/bmjspcare-2012-000220rep

2014

Sampson C, Finlay I, Byrne A, Snow V, Nelson A. (2014). The practice of palliative care from the perspective of patients and carers. BMJ supportive & palliative care, 4 (3), pp. 291-8. http://dx.doi.org/10.1136/bmjspcare-2013-000551

Fitzgibbon J, Baillie J, Simon N, Nelson A. (2014). The role of the public in developing interventions: a reflection and critique of a cancer clinical trials unit's model. Patient preference and adherence, pp. 1527-35. https://doi.org/10.2147/PPA.S66734

Adamson D, Blazeby J, Nelson A, Hurt C, Nixon L, Fitzgibbon J, Crosby T... Byrne A. (2014). Palliative radiotherapy in addition to self-expanding metal stent for improving dysphagia and survival in advanced oesophageal cancer (ROCS: Radiotherapy after Oesophageal Cancer Stenting): study protocol for a randomized controlled trial. Trials, pp. 402.  DOI: 10.1186/1745-6215-15-402

Baillie J, Harrop E, Hopewell-Kelly N, Stephens K, Byrne A, Nelson A. (2014). ENGAGING MINORITY ETHNIC COMMUNITIES TO IMPROVE ACCESS TO PALLIATIVE CARE: BARRIERS AND STRATEGIES. BMJ Supportive & Palliative Care, 4 (1), pp. 114.1-114. http://dx.doi.org/10.1136/bmjspcare-2014-000653.28

Bowyer A, Finlay I, Byrne A, McCarthy J, Harrop E, Sampson C, Snow V... Nelson A. (2014). AFTER IWANTGREATCARE: SERVICE USER FEEDBACK AS A MEANS OF REFINING THE IWANTGREATCARE QUESTIONNAIRE. BMJ Supportive & Palliative Care, 4 (Suppl 1), pp. A47.3-A48. http://dx.doi.org/10.1136/bmjspcare-2014-000654.133

2013

Nelson A, Fenlon D, Morris J, Sampson C, Harrop E, Murray N, Wheatley D... Barrett-Lee P. (2013). QUALZICE: a QUALitative exploration of the experiences of the participants from the ZICE clinical trial (metastatic breast cancer) receiving intravenous or oral bisphosphonates. Trials, pp. 32. DOI: 10.1186/1745-6215-14-325

Byrne A, Sampson C, Baillie J, Harrison K, Hope-Gill B, Hubbard R, Griffiths G... Nelson A. (2013). A mixed-methods study of the Care Needs of individuals with idiopathic Pulmonary fibrosis and their carers--CaNoPy: a study protocol. BMJ open, 3 (8), http://dx.doi.org/10.1136/bmjopen-2013-003537

Harrop, E., Nelson, A., Edwards, Michelle, Sivell, S., Hood, Kerenza, Griffiths, G., Byrne, A., Moore, B., Ahmed, S. and Noble, S. 2013. Living with lung cancer: a longitudinal interview study with patients participating in the FRAGMATIC trial. Psycho-Oncology 22 (S1) , p. 18. DOI: 10.10002/pon.3239

2012

Edwards M, Sivell S, Harrop E, Nelson A, Hood K, Griffiths G, Byrne A... Noble S. (2012). 110 Motivations of palliative lung cancer patients to participate in a non-placebo clinical trial (QualFRAG). Lung Cancer, pp. S36. https://doi.org/10.1016/S0169-5002(12)70111-3

Noble S. Are you a successful researcher? Well it depends who's asking. 2012. BMJ Supportive & Pall Care. Vol 2: 207-208.  http://dx.doi.org/10.1136/bmjspcare-2012-000301

2011

Gillon S, Noble S, Ward J, Lodge K, Nunn A, Koon S, Johnson M. 2011. Primary Thrombo-prophylaxis for hospice in-patients? Who needs it? DOI: 10.1177/0269216310397567

Harris D, Finlay IG, Flowers S, Noble S. The use of crisis medicine in the management of terminal hemorrhage due to incurable cancer: a qualitative study. 2011. Palliative Medicine. Vol 25(7): 69. doi 10.1177/0269216311401464

Harris D, Flowers S, Noble S. Nurses' views of the coping and support mechanisms experienced in managing terminal haemorrhage. 2011. International Journal of Palliative Nursing. Vol 17(1): 7 - 13. https://doi.org/10.12968/ijpn.2011.17.1.7

Taubert M, Nelson A. (2011). Heartsink encounters: a qualitative study of end-of-life care in out-of-hours general practice. JRSM short reports, 2 (9), pp. 70. doi/10.1258/shorts.2011.011020

Taubert M, Noble SI, Nelson A. (2011). What challenges good palliative care provision out-of-hours? A qualitative interview study of out-of-hours general practitioners. BMJ supportive & palliative care, 1 (1), pp. 13-8. http://dx.doi.org/10.1136/bmjspcare-2011-000015

2010

Maraveyas, Anthony, Johnson, Miriam J., Xiao, Yu Pei and Noble, Simon Ian Robert 2010. Malignant melanoma as a target malignancy for the study of the anti-metastatic properties of the heparins. Cancer and Metastasis Reviews 29 (4) , pp. 777-784. 10.1007/s10555-010-9263-y

Noble, Simon Ian Robert and Johnson, Miriam 2010. Finding the evidence for thromboprophylaxis in palliative care: first let us agree on the question [Editorial]. Palliative Medicine 24 (4) , pp. 359-361. 10.1177/0269216310366389

Noble S, Pasi J. (2010). Epidemiology and pathophysiology of cancer-associated thrombosis. British journal of cancer, pp. S2-9. doi:10.1038/sj.bjc.6605599

Stansby G, Noble S, Howes O. (2010). The importance of venous thromboembolism - a physical consequence of psychiatric treatments. International journal of clinical practice, 64 (8), pp. 1005-6. DOI: 10.1111/j.1742-1241.2010.02435.x

Taubert M, Nelson A. (2010). Out-of-hours GPs and palliative care-a qualitative study exploring information exchange and communication issues. BMC palliative care, pp. 18. DOI: 10.1186/1472-684X-9-18

Taubert M, Nelson A. (2010). 'Oh God, not a palliative': out-of-hours general practitioners within the domain of palliative care. Palliative medicine, 24 (5), pp. 501-9. doi/10.1177/0269216310368580