In 2016, the Wales Cancer Research Centre (WCRC) received funding from Health and Care Research Wales to undertake research about cancer and social care - a new area of work that sits within the Community research theme. Findings from the Social Care and Cancer Conference were published in April 2018. The conference brought together academics, government, statutory and third sector professionals with patient representatives to identify key service challenges and prioritise areas where research can support future practice change in relation to social care for people with cancer. Find out what the next steps are.
Sixteen percent of all deaths registered in Wales during 2016 took place in a care home. We have undertaken a survey, commissioned by the End of Life Care Board and funded by Welsh Government, to identify the key challenges to delivering high quality end of life care in care homes in Wales. Our Survey Report May 2018, outlines how care homes are currently meeting the needs of their end of life residents, and puts forward some recommendations for continued improvement.
We have also undertaken a survey, commissioned by Public Health England with input from the National Council for Palliative Care and Hospice UK, to examine the role of specialist palliative care in providing support to care homes in England. This survey of organisations providing specialist palliative care services to care homes highlights the good work they do and identifies the key challenges they face. Survey Report August 2017
As there is currently no single agreed definition of social care, in October 2016, we reviewed and adapted existing social care literature to create a working definition applicable to adult cancer care.
This definition aims to provide a comprehensive description of social care that includes the full range of adult social care services, as well as the support needs of individuals diagnosed with cancer and their carers. It will be used in conjunction with social care research guidelines to help us identify research opportunities that we believe will result in improved social care and support, and better experiences for people with cancer, and their carers, in Wales.
Social care refers to a range of services provided across different settings, usually in the community. Social care services may offer advice, personal care, practical assistance, promotion of equality and protection of rights to adults diagnosed with cancer, and their carers, who require extra support to meet their personal, practical, emotional, economic and social needs. The supportive functions of social care aim to improve quality of life, and to enhance wellbeing on an individual, community and societal level.
In 2016, Health and Care Research Wales developed social care research guidelines that will further inform our work.
Please refer to our Position Statement for full details.
For information about our social care research, please email Alisha Newman at firstname.lastname@example.org, or call 02920687948.